000 nab a22 7a 4500
999 _c16885
_d16885
003 PC16885
005 20220602120415.0
008 220601b xxu||||| |||| 00| 0 eng d
040 _cH12O
041 _aeng
100 _91416
_aInocencio Arocena, Jaime de
_ePediatría
245 0 0 _aConsensus of the Spanish society of pediatric rheumatology for transition management from pediatric to adult care in rheumatic patients with childhood onset.
_h[artículo]
260 _bRheumatology international,
_c2015
300 _a35(10):1615-24.
500 _aFormato Vancouver: Calvo I, Antón J, Bustabad S, Camacho M, de Inocencio J, Gamir ML et al. Consensus of the Spanish society of pediatric rheumatology for transition management from pediatric to adult care in rheumatic patients with childhood onset. Rheumatol Int. 2015 Oct;35(10):1615-24.
501 _aPMID: 25917856
504 _aContiene 33 referencias
520 _aTo develop recommendations on the transition from pediatric care to adult care in patients with chronic inflammatory rheumatic diseases with childhood onset based. Recommendations were generated following nominal group methodology and Delphi technique. A panel of 16 experts was established. A systematic literature review (on transitional care) and a narrative review were performed and presented to the panel in the first panel meeting to be discussed. A first draft of recommendations was generated and circulated. Focal groups with adolescents, young adults and parents were organized. In a second meeting, the focus group results along with the input from invited psychologist were used to establish definitive recommendations. Then, a Delphi process (two rounds) was carried out. A group of 72 pediatric and adult rheumatologists took part. Recommendations were voted from 1 (total disagreement) to 10 (total agreement). We defined agreement if at least 70 % voted ≥7. The level of evidence and grade or recommendation was assessed using the Oxford center for evidence-based medicine levels of evidence. Transition care was defined as a purposeful, planned process that addresses the medical, psychosocial and educational/vocational needs of adolescents and young adults with chronic inflammatory rheumatic diseases with childhood onset as they move from child-centered to adult-oriented healthcare systems. The consensus covers: transition needs, barriers and facilitators, transitional issues (objectives, participants, content, phases, timing, plans, documentation and responsibilities), physicians' and other health professionals' knowledge and skill requirements, models/programs, and strategies and guideline for implementation. Preliminary recommendations and agreement grade are shown in the Table (first Delphi round). These recommendations are intended to provide health professionals, patients, families and other stakeholders with a consensus on the transition process from pediatric to adult care.
710 _9446
_aServicio de Pediatría-Neonatología
856 _uhttp://pc-h12o-es.m-hdoct.a17.csinet.es/pdf/pc/1/pc16885.pdf
_ySolicitar documento
942 _2ddc
_cART
_n0